Thousands of seriously ill children are living without the specialist care they need.
Fund a Roald Dahl Nurse Today!
Help us raise £1 million to establish Roald Dahl Nurses in hospitals across the UK for children living with the most complex medical conditions.
Children with medical complexity (CMC) have multiple devastating conditions, often rare or even undiagnosed. These require specialist care from numerous consultants, hospitals and health professionals. Many of these children are unable to walk , talk or even eat, and many face a life-limiting diagnosis.
Medical advancements mean these children are living longer and the need for specialist care is growing. A complex diagnosis brings overwhelming challenges and stress, a sense of isolation and a path of scary unknowns.
That’s why our extraordinary Roald Dahl Nurses are so vital.
There are over 150 Roald Dahl Nurses currently supporting over 36,000 seriously ill children across the UK, BUT thousands more children are without that vital care.
That’s where your support comes in. Donate today and every penny of your generous donation goes directly to providing this crucial care for children and their families. Thank you.
We believe every seriously ill child deserves a Roald Dahl Nurse.
The Impact of Our Roald Dahl Nurses
Roald Dahl Nurses are trained and dedicated specialists who help families by providing coordinated, dedicated, and holistic care.
They are a consistent presence in the child’s life from initial diagnosis through to transition to adult services. They don’t just provide care and advise; they reassure and are a pillar of strength in times of uncertainty.
Support from a Roald Dahl Nurse reduces the need for A&E visits, hospital admissions and consultant appointments, meaning more precious moments spent at home together as a family.
Together, we can make a real difference – because every seriously ill child deserves a Roald Dahl Nurse.
Find out more about the impact of our Roald Dahl Nurses here.
Max's Story
Meet Max
Max receives vital specialist care from his Roald Dahl Nurse Lisa.
Max has GRIN2D- related disorder and epilepsy. GRIN2D-related disorders can cause a range of neurodevelopmental conditions, with the symptoms a child experiences and the severity of the disorder varying widely. Max is unable to walk, talk and is dependent on a tube for feeding. He is also registered blind and suffers regular seizures.
Max's foster mum, Suzannah says: “It’s hard to put into words what Lisa does and what Lisa is, to us. She is the foundation that holds so many things together for us."
