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Roald Dahl Nurses are a vital lifeline for seriously ill children, however too many do not receive this specialist care.

Roald Dahl Nurses currently care for over 36,000 children living with lifelong, complex conditions across the UK. We believe every seriously ill child deserves a Roald Dahl Nurse.

With your support, we can establish Roald Dahl Nurses, so that children, like Max, no longer have to brave their illnesses alone.

Max's Story

Meet Max

Max receives vital specialist care from his Roald Dahl Nurse Lisa.

Max has GRIN2D- related disorder and epilepsy. GRIN2D-related disorders can cause a range of neurodevelopmental conditions, with the symptoms a child experiences and the severity of the disorder varying widely. Max is unable to walk, talk and is dependent on a tube for feeding. He is also registered blind and suffers regular seizures.

Max's foster mum, Suzannah says: “It’s hard to put into words what Lisa does and what Lisa is, to us. She is the foundation that holds so many things together for us."

Max and Suzannah Goodchild 2022

Meet Safia

Safia is cared for by her Roald Dahl Nurse Natasha. Safia is a cheeky, fun-loving 4-year-old who loves sensory toys and hearing people's voices as they talk and read stories to her.

Safia has regular seizures and is fed through a tube. She is unable to walk or talk, needs support to sit and stand and is visually impaired, however, she can hear. Safia's Mum, Faatimah, explains, “She has her own little personality, she can be very cheeky at times and we’ve learnt her own little language of screaming and being happy, it’s a different way of communicating. She loves people engaging with her or just someone new talking to her or reading her stories.”

The family met their Roald Dahl Nurse, Natasha, very soon after Safia’s diagnosis. They instantly felt that she was a positive presence in their lives, at a time when they felt like their world was crashing down. Faatimah commented, "Natasha helped us with everything. She could answer any questions we had and went above and beyond...I remember this quite vividly; I'll never forget it. She wrote down on a piece of paper all the specific support we could access and she said we could contact her about anything."

Safia
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