Max's Story

Safia is cared for by her Roald Dahl Nurse Natasha. Safia is a cheeky, fun-loving 4-year-old who loves sensory toys and hearing people's voices as they talk and read stories to her.

Safia has regular seizures and is fed through a tube. She is unable to walk or talk, needs support to sit and stand and is visually impaired, however, she can hear. Safia's Mum, Faatimah, explains, “She has her own little personality, she can be very cheeky at times and we’ve learnt her own little language of screaming and being happy, it’s a different way of communicating. She loves people engaging with her or just someone new talking to her or reading her stories.”

The family met their Roald Dahl Nurse, Natasha, very soon after Safia’s diagnosis. They instantly felt that she was a positive presence in their lives, at a time when they felt like their world was crashing down. Faatimah commented, "Natasha helped us with everything. She could answer any questions we had and went above and beyond...I remember this quite vividly; I'll never forget it. She wrote down on a piece of paper all the specific support we could access and she said we could contact her about anything."